Advance Research, Early Detection and Treatment for Rare Tumors

photo home 1

photo home 2

photo home 3

Welcome to the International Ovarian and Testicular Stromal Tumor Registry. The Registry collects clinical and biologic information about ovarian and testicular stromal tumors in hopes of learning more about treatment of these rare tumors.

OTST Registry FAMILY MEETING 2015: Registration is open.

We look forward to meeting our OTST participants and families.

The 2015 PPB and OTST Family Meeting. Online registration by Cvent
cvent.com

Listen to Michael, Megan & Andrew's OTST & PPB story:

 https://www.youtube.com/watch?v=SoxQAzec--4&;feature=youtu.be

GO TEAL and GOLD for OVARIAN AND CHILDHOOD CANCER AWARENESS MONTH!!

St. Baldrick's Foundation (Registry sponsor) article highlighting an OTST family:

http://www.stbaldricks.org/blog/post/research-funded-by-st-baldricks-leads-to-early-detection-of-infants-rare-childhood-cancer?utm_source=MC&;utm_medium=email&utm_content=andrewbutton&utm_campaign=reallifestories

 

2nd GCT Sisters Weekend in Denver, CO:

http://gctsisters2014.weebly.com/

Local and national outlets: Sharing the story of Children's cancer and blood disorders expertise


Happy 3rd Anniversary International OTST Registry

OTST Family Meeting Registration

OTST Registry FAMILY MEETING 2015: Registration is open

The meeting will be August 7 – 9, 2015 in Bloomington, MN, USA.

The International Ovarian and Testicular Stromal Tumor (OTST) Registry (IOTSTR) invites those affected by ovarian tumors and their families to attend the 2015 OTST Family Meeting. Families with individuals diagnosed with PPB, a rare childhood lung cancer, have held meetings like these in the past and have found them to be informative and they have enjoyed m...eeting other families touched by the same rare disease. Because we have learned certain ovarian and testicular tumors are related to PPB, those affected by PPB as well as those affected by other DICER1 related tumors including ovarian stromal tumors are also being invited to this year’s meeting. The focus this year will be on DICER1 and DICER1 related tumors.

Experts on ovarian and testicular stromal tumors will be at the meetings to share information on how these cancers are diagnosed and treated, and to provide information on the genetics related to certain diagnoses. The meeting will also include time for questions, and small group sessions on a variety of topics relevant to those affected by ovarian and testicular tumors. For those too young to attend the scientific meetings, there will be a children’s area with plenty of activities and trained volunteers.

We look forward to meeting our OTST participants and families.

See More
The 2015 PPB and OTST Family Meeting. Online registration by Cvent
cvent.com

To support the International Ovarian and Testicular Stromal Tumor Registery, please use the DONATE NOW button.